From Rare Condition to Kindergarten Confidence.

Good afternoon,

Arlo was conceived as one of twins in 2015. At 20 weeks we had known that his twin would not make it and his in depth ultra sound revealed that Arlo was suffering from a rare congenital deformity called Bilateral Vertical Talus. A deformity that affects a rare 1 in 10000 births. Both his feet were dislocated through the mid section and deformed. Arlo underwent casting and splinting every week from 4 weeks of age, up until 12 months of age. He then had two surgeries. One to wire his dislocated feet back in place and a month later the wires were removed. His casting and splints continued until he was eventually fitted with Ponsetti boots & a bar which froze his feet in the correct position. This ranged from 23 hours a day initially until he was 2 years old, when they were reduced to overnight only then, they were replaced with full time Ankle, Foot Orthotics which he wears to this day. Arlo has always maintained a happy disposition despite cumulative sensory and emotional processing disorders.

Today Arlo wears his orthotics to Kindergarten and maintains a healthy relationship with his teachers and peers, he loves being around positive people.

Emily & I have been supported by the NDIS throughout this time however, the intervention of private agencies like Variety Tasmania with offers of assistance, have been vital in maintaining healthy down time and attaining the range of resources needed to give Arlo a good time.

We are extremely grateful for all the help we've had, heaven knows it's been a busy time for Arlo and his two sisters, Elysia 9 & Eisla 2.

Kind regards
Arlo's Dad, Craig Scott

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