Avi was diagnosed with Spinal Muscular Atrophy Type 1 (SMA1), a rare genetic condition that affects muscle strength and movement.
For many years, a diagnosis of SMA1 meant a life expectancy of just nine months. But Avi was given a chance that few before her had — she was selected for a trial treatment, and the results were remarkable.
As Avi began to respond well to treatment, her family faced the next challenge: ensuring she could get out into the world.
Variety stepped in to help, funding her powered wheelchair and supporting modifications to the family van. This not only gave Avi mobility but also gave her family the freedom to be out and about together, creating memories beyond hospital walls.
Fast forward to today, and Avi is now a bright, engaging five-year-old who continues to defy the odds. She is reaching incredible milestones once thought impossible, including walking unassisted in water — a huge achievement for someone with SMA1. Much of this progress is thanks to her participation in the Variety Starfish Swim Program, a learn-to-swim initiative designed for children who require extra support.
Avi’s story is one of resilience, hope, and the power of community support. With the right equipment, therapies, and opportunities, she’s been able to unlock her potential and enjoy the freedom every child deserves.
Every Child Deserves to Thrive
Change Takes All Of Us
Every child deserves the chance to explore, grow, and dream without limits. Their potential shouldn’t be defined by disability, illness, or financial hardship. We work to remove those barriers and open the doors to new possibilities.
